Channel: Attitude

Category: Entertainment

Tags: cdkl5 seizurecdkl5 syndrome2021intellectualongenitalrare disabilitiesdisability awareness for kidsmy perfect familyrare conditions in humansmy perfect family attitudedisability awarenessfamilyautism spectrum disordercdkl5 deficiency disorderrare conditionsdisability awareness month 2021rare conditions documentary

Description: Learning that your baby has a rare, complex condition is life altering. In this episode we meet three families whose young children have all been diagnosed with CDKL5 - a condition that causes epilepsy and limits their ability to walk, talk and eat. There are just 10 children in the country with CDKL5, making the community small but supportive. These three families have all taken their own unique approaches in navigating daily life - from physiotherapy to diet, education and medication.