Channel: Niah Selway

Category: People & Blogs

Tags: helptreatmentmedicalaquagenicpruritusgermanygofundmeallergictowatertravel vlogprivate treatmentbbcdocumentary

Description: #AllergicToWater #AquagenicPruritus * This is a reposted video, created 6 days ago now, so please do check my progress before donating. I am so grateful for any of you continuing to donate, as my target was only ever an estimate of what I’d need, as I still have no idea what treatments, medications or routes they may choose to take me down yet, which will increase the price as they decide on new treatments. Your donations are enabling me to prepare for any treatment they may throw at me, without having to run a new fundraiser each time the price increases, as I get further along my journey with them. ❤️ * Go Fund Me Link - gf.me/u/yfj5d5 ______________________________________________________________________ Hi everyone, my name is Niah Selway and I am a 23 year old woman from the UK. I suffer with a rare skin condition called Aquagenic Pruritus, which means I have allergic reactions when water comes into contact with my skin. My skin itches for hours after I come into contact with any form of water including rain, sweat, tears, urine etc. I wasn’t born with this condition, but it became worse through my teenage years, as I went through puberty. I started to have allergic reactions to my showers, which became more and more frequent as time passed. My doctors put it down to a change in my hormones, but after many attempted treatments to lessen my symptoms, they soon decided that my skin condition was likely incurable, as I had responded to nothing they had tried and they couldn’t find a specific cause for why this started happening to me. My allergic reactions feel like an intense itching, burning sensation, which can’t be soothed by anything. They can last up to 3 hours after the initial contact with water, which makes bathing and caring for myself in general an ongoing challenge, because I so frequently have allergic reactions and am left in such excruciating pain. If I itch my skin, it doesn’t give me any relief, to moisturise it doesn’t help and antihistamines, painkillers and all of the treatments my doctors at St Thomas’ Hospital have tried didn’t have any impact on my symptoms either. So far, my treatment has been entirely provided by the NHS, which I am so eternally grateful for. I am, however, reaching the pointwhere they have exhausted their treatment options for my situation and quite honestly, it doesn’t feel like they have much belief that they can help me. I have a number of tests and routes I want to explore which remain unexplored despite asking my current doctors to investigate, which I believe will be looked at more closely and regularly by the private clinic I have in mind, who specialise in treatment for Pruritic conditions of the skin. __________________________________ Please read the rest of my story here: gofund.me/ce396e5c #gofundme ______________________________________________________________________ Social Media • Instagram: instagram.com/niahselway Twitter: twitter.com/niahselway Facebook: facebook.com/niahselway Official website: niahselway.com • ____________________________________________________________ Please subscribe angels, I'll love you forever youtube.com/niahselway/?sub_confirmation=1 Please comment any questions, suggestions or opinions that you may have - although I may not always be able to reply to every comment, I promise I will always read them all! For advertisements, sponsorships, collaborations and business enquiries email niah@niahselway.com ____________________________________________________________ Music Music by Epidemic Sound ____________________________________________________________ This video is NOT sponsored, but I do sometimes use affiliate links. The links/codes above with a '*' next to them are affiliate links - which means I receive a percentage of the revenue made from purchasing products through this link. This would never influence my opinion on a product and I will only ever recommend a product in which I have true belief. ____________________________________________________________