Channel: FoolyLiving

Category: People & Blogs

Tags: faith of a mustard seedfoolylivingsevere lipedemawhat happened to job in the biblelife of joblipedemaautismlife of job in the biblekeep going no matter whatocdehlers danlos syndromeasdstory of jobdaily vlog with autismedsgirls with autismstage 4 lipedemafeeling hopelessstill pushing forwardmoving forward

Description: Hadar is water fasting and has lost a lot of weight already. He's already past his goal weight of what he wanted to lose while water fasting. He is doing a hard reset on his diet and exercise. I go to the doctor to try to get surgery for lipedema. I have EDS and having lipedema compounds the problem and causes a lot of pain that affect my mobility, my mental health, my life, and the well-being of my family. I'm doing home renovations right now and really enjoying the process, but also have anemia which is another road block to living. It can only get better.....right? If I can't get approved on insurance for surgery, the cost out of pocket is around $70,000. That is the cost of my future - it may as well be a million dollars. Dr. Jamie Schwartz of @totallipedemacare requires 13.9k per surgery paid in full and in cash before each procedure. I'm so discouraged. I would love to have surgery there, because he gets ALL of the lipedema out of your body. I'm not sure why all of this is happening. I'm not getting treated for the lipedema because the surgeon is refusing to even look at me. I'm 5'0" and in stage 4 lipedema which makes my BMI very high on paper. The amount of weight that I am ABLE to actually lose is very low compared to what BMI they want me to have. I feel trapped in my body at this point. Being extremely short is not helping because it makes my BMI higher on paper. Doctors who actually look at me and inspect the fat on my body, know that most of the fat is diseased lipedema fat. You absolutely cannot lose lipedema fat from diet and exercise. Trust me, I have tried to starve it off and it doesnt work. I've stabilized my weight for the past 2 years, while this disease keeps progressing and the problem is literally getting bigger. I feel very hopeless, but keep thinking about having faith the size of a mustard seed. I think that is all I have left right now. I'm at a crossroad. I can either become disabled and live my life with limited mobility, or I can magically get approved for surgery through my insurance and reduce my pain and gain mobility in vast amounts. I am fortunate to have a very, very, very high pain tolerance. I think that and my patience is allowing me to even exist right now. Thank you for the encouragement and the understanding that you have shown me while I continue to wait for care. YESTERDAY'S VIDEO: youtu.be/dLOsD7-ebqs Hadar, Andrea, Rafael, Abigail, Kitty & Rudy. From Israel to America! This is our story told in a daily vlog for the past 13 years! #Autism #OCD #Lipedema #EDS #connectivetissuedisorders #awareness Our Mailing Address: FoolyLiving 2375 NE 25th Ave #313 Ocala, FL 34470 Rafael's C-section Birth Vlog: youtu.be/2x-cP_jvDYM Abigail's C-section Birth Vlog: youtu.be/pUC_BdL_Xsg Visit Our Other Channels: Ineedmorelives - Weight Loss youtube.com/ineedmorelives FoolyFun - Rafael and Abigail youtube.com/foolyfun FoolyCooked - Cooking & Cleaning: youtube.com/foolycooked About Us: Andrea used to live in Florida, until she met her husband Hadar online on World of Warcraft. We met for the first time in Israel, and got married in America. Andrea moved to Israel and had been living there for 10 years. We are happy to announce that.. Our family just recently moved to AMERICA! We made it! We are a fun loving and happy family. We are not fake family vloggers. You will never see us being fake. Views are not as important to us as our integrity. Many of our family and real life friends watch our videos. You can be assured that what you are seeing is 100% truth and reality. You will not only see the best of us, but the worst of us as well. We all have a story to tell and it's not always pretty. For us, it will always be real. I do not make videos just for you. These are my family's memories. There would be no point in making videos if it weren't the truth. Please remember, when leaving a comment, that we are not characters on a tv show. We are real people. About our son: Rafael was diagnosed with #OCD and High Functioning #Autism, also known as #Asperger's syndrome, on the Autism spectrum (ASD). We have a few videos of Rafael so you can understand his diagnosis better: DAY IN THE LIFE of a 3 year old with Autism (Aspergers Syndrome): youtu.be/-Oyj89ynMNA OCD in a 3 year old: youtu.be/GPcIrNnsruc PLEASE SUBSCRIBE! NEW VIDEOS EVERY SINGLE DAY! If you've read this far, the secret phrase is: "FoolyFun we have when we are FoolyLiving." LEAVE US A COMMENT TO LET US KNOW YOU WERE HERE! youtube.com/user/FoolyLiving/community Royalty-Free Music by Kevin MacLeod: incompetech.com Royalty-Free Music by audionautix.com Royalty-Free Music by Twin Musicom at twinmusicom.org I work with Amazon as an affiliate. If you need to shop for ANYTHING on Amazon, please use our link before you shop. It does not cost you extra, but it gives us a little bonus, which helps our family out! Thank you!